My Child Through My Eyes…

The phrase ‘Mama knows best,’ or don’t doubt your ‘Mama instinct,’ has never rang true more now then ever. I’ll let you in on a little secret. I felt I was a terrible mother when I had my first born. They told me I’d be able to tell by his cry what he needed. A certain cry meant he’s tired. Another cry meant he’s hungry. Another one meant he has a messy diaper. The list goes on. I felt I did not have that God-given Mom intuition I was supposed to have. Then #2 came…and #3…and finally #4. News flash! A cry is a cry. I never figured it out. You know what gave away a messy or wet diaper? That lovely little line that turned blue when they became wet. Or that sweet smell breastfed babies poop smells like. Not crying. When they were hungry, the bobbing of the head was my hint. Not the crying. But I still felt like a terrible mother.

4 years later and our Sweet #3 had hours upon hours of evaluations. And although they gave me a diagnosis of a Language Disorder and Social Anxiety, I still felt something was being missed. I completely agreed with the diagnosis’, but no one still got a good read on him. No one had a full ‘day in the life of Kylan Jack,’ if you will.

At the Chiropractor they talk about peeling back the layers like an onion. They could definitely see the ‘social anxiety’ piece (although they don’t ‘label’ a child, they treat the symptoms), but it wasn’t until this last scan they were surprised! Here Trav and I thought his first scan would show up with A LOT of red. (Gas Pedal) But it didn’t. And we were still a little disappointed. It had absolutely NO red.

He was still not balanced at all, but it didn’t show any of his crazy energy we deal with at home. Fast forward 3 months of ‘peeling back the layers,’ and this was his most recent scan at the end of May.

Holy. Moly. There it is! They, Were. Shocked. Ahhhhh my little Kylan Jack, you’re just now coming to play. I don’t feel crazy anymore! Although he’s showing a ton more energy and I have proof behind the craziness that is our home, he’s much more balanced. So they were extremely pleased about that. Now they’re working on getting the ‘break pedal’ to work, because he’s been functioning purely on the ‘gas pedal,’ and this Mama is feeling it! Ha! Luckily his language ability has improved tremendously, so we aren’t dealing with the constant melt downs or lack of being able to understand us. But the energy level has most definitely been at an all time high. Not sure if I should be thanking them for peeling back the layers so much. Lol!

This is what they want to see by the time his Treatment Plan is done and he switches over to Wellness Care (Maintenance).

As we’ve been going through Chiropractic care, along with private speech and OT sessions, his ‘social anxiety’ has improved some, along with him understanding conversation MUCH better, being able to name objects, know more and more colors, etc. But here’s the kicker. The therapy center he has been going to has been giving me hand outs of how to help him at home. Guess what the hand outs are all based on?…Sensory Processing Disorder. Yep. My Mama instinct is finally coming to play.

I don’t even care about getting the ‘right’ diagnosis or another diagnosis, because I do believe they diagnosed a part of him correctly…110%, but I still felt they were missing some pieces to the puzzle. We live with him day in and day out. And we have to know and believe in our hearts, that we will know him better then anyone. Better then any evaluation will ever show.

I’m thankful that his center is adjusting his therapies accordingly, along with giving me ideas to do at home. Sort of the same approach as the Chiropractor. They’re working with the symptoms/behaviors they’re seeing in OT and it’s helping tremendously! It’s most definitely been a journey. It’s a 2 steps forward, 1 step back sort of feeling. But I’m fully trusting the process. He’s in good hands. And for that, I am thankful.

~xoxo